I was alone caring and looking after my mother. During her last days I had gone through the stress and anxiety. After my mother passed away peacefully I started visiting similar patients / caregivers for their much needed medical and moral support. There after few volunteers joined me in this mission and on 28th December, 2000, the first death anniversary of my beloved mother, we formed an informal support group. I along with others volunteers became caregivers for such patients. This gave us an immense satisfaction and contentment.
It was Saturday evening dated 10.02.2001, suddenly I received a call from Ms. Radhika D. Srivastava who introduced her as a reporter in Health Sector of "The Times of India". She had queries as to what difficulty I experienced while treating / caring my mother. Our conversation continued for ninety minutes. At the end Radhika asked me if she could publish this conversation in "Time Of India" with my phone numbers which I agreed.
Next morning Sunday 11.02.2001 an article was published in "TOI" Page – 3 under the heading “LIFE IN THE TWILIGHT ZONE” (Link a Newspaper Cutting attached annexure - 1) which brought together 235 families from all over Delhi and other States. The plight of every family was almost the same. The main issues identified were :-
- Lack of Awareness about Alzheimer disease
- It's management
- Coping skills
- Economic burden
On 03.09.2001 this informal Support Group was registered as NGO “Hope Ek A.S.H.A.” under Societies Registration Act XXI of 1860 with the Registrar of Societies, Govt. of NCT of Delhi. Link Registration Certificate annexure - 2